The Greater Philly Area FSHD Society chapter meets for an in-person community gathering.
Sat, 20 Jun 2026
10:00 AM – 1:00 PM (America/New_York)
Wissahickon Valley Public Library Blue Bell , Pennsylvania
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The FSHD Society's Greater Philly Area chapter is hosting an in-person meeting at the Wissahickon Valley Public Library in Blue Bell. This event provides a vital space for individuals and families affected by Facioscapulohumeral Muscular Dystrophy (FSHD) to connect, share experiences, and receive support. The meeting focuses on community building and providing resources for those navigating life with FSHD. All are welcome to join this supportive gathering in the local community.
What to Expect
A supportive and informative meeting for the FSHD community.
Who Should Attend
FSHD patients
Families
Caregivers
Medical professionals
Agenda Overview
Community meeting and support session.
Venue & Address
Wissahickon Valley Public Library
650 Skippack Pike Blue Bell , Pennsylvania – 19422 United States
Organizer
FSHD Society · Non-profit
The world's largest research-focused patient organization for FSHD.